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Time to Make Preparations

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Next Topic: Central line Placement

Before you have a stem cell transplant, your care team will do a number of tests to make sure your body is ready.

These may include:

  • Blood tests to check overall health.

  • Imaging tests (like X-rays or scans) to look at organs and presence of infection

  • Heart and lung checks to see how well they are working.

  • HLA (human leukocyte antigen) testing to find the best donor for you.

These tests help your transplant team understand your health, prepare you for treatment, and find the best possible donor.

Common Myths

Myth: Family members are always a match.

Fact: Not always. Even close relatives may not be a suitable donor.

Myth: A sibling will definitely match.

Fact: There is only a 25% (1 in 4) chance that a sibling will be a match.

Helpful Hints

Insurance support: Most transplant centers have staff who can guide you through insurance and financial questions.

Emotional support: Psychologists, social workers, and support groups are part of your care team—don’t hesitate to ask for them.

Apps for coping and routine: Some people find tools like Habitica, Finch, or Everyday helpful for staying organized and motivated.

Plan small distractions: Build in things to look forward to during the process—movies, visits, hobbies, or treats.

Work and leave: Talk with your employer about taking medical leave or adjusting your schedule.

Caregiver care: Caregivers will need support. It’s important for them to take care of their own health and well-being.

Communication: Keep family and friends updated in a way that works for you—group chats, emails, or blogs can save energy and avoid repeating the same updates many times.

Next Topic: Central line Placement

Disclaimer: This Journey Map is for educational purposes only. It does not provide medical advice, diagnosis, or treatment. Every patient’s situation is unique, and care decisions should always be made in consultation with your clinical team.

We extend our appreciation to Sanofi and Alexion for their generous partnership and active participation in our community. Their support helped bring patients, caregivers, clinicians, and industry partners together to co-create this Journey Map and improve the transplant experience.

Our Journey Map was created for Patients and Caregivers by Patients and Caregivers. Please share any corrections or additions!