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Long-term Follow Up Screening

Table of Contents
Next Topic: Survivorship and Long-Term Follow-up

Long-term follow-up screening is essential for patients recovering from a stem cell transplant, as it helps detect and manage late effects that may arise months or even years after treatment. Regular screenings enable healthcare providers to monitor complications such as secondary cancers, cardiovascular problems, and hormone imbalances. By staying proactive in follow-up care, patients can address potential health issues early, supporting their overall well-being in the years ahead.

Why it matters

  • Many complications appear months or years after transplant

  • Survivors have higher risks of heart disease, diabetes, thyroid issues, and secondary cancers

  • Regular screening allows early detection and timely intervention

  • A multidisciplinary care team—including hematologists, primary care providers, and specialists—is key to managing complex needs

Building a survivorship plan

  • Work with your team to create a personalized screening schedule

  • Keep a centralized record of test results, appointments, and medication changes

  • Ask for plain-language summaries of your health status and next steps

  • Make sure you have the information of what is needed for your screening to provide to your primary care provider as they might not be as experienced in the area

  • Include mental health check-ins—fatigue, anxiety, and trauma are common and treatable

Next Topic: Survivorship and Long-Term Follow-up

Disclaimer: This Journey Map is for educational purposes only. It does not provide medical advice, diagnosis, or treatment. Every patient’s situation is unique, and care decisions should always be made in consultation with your clinical team.

We extend our appreciation to Sanofi and Alexion for their generous partnership and active participation in our community. Their support helped bring patients, caregivers, clinicians, and industry partners together to co-create this Journey Map and improve the transplant experience.

Our Journey Map was created for Patients and Caregivers by Patients and Caregivers. Please share any corrections or additions!